In a recent government meeting, advocates for epilepsy awareness and safety in schools presented a compelling case for House Bill 5329, known as the Seizure Safe Schools Act. Carla Boyd, an EFM board member and parent advocate, introduced the bill alongside her son, Wyatt Sterling, a high school student whose sister suffers from drug-resistant epilepsy.
Wyatt shared his family's personal struggles with epilepsy, emphasizing the urgent need for the proposed legislation. He highlighted the challenges faced by his sister, Lane, who experiences daily seizures and requires constant medical care. A recent incident at her school, where she had a grand mal seizure without trained personnel available, underscored the critical need for better preparedness in educational settings.
The bill aims to enhance safety for the approximately 14,000 students with epilepsy in Michigan by mandating seizure recognition and first aid training for school personnel every two years. Additionally, it requires that each student with an epilepsy diagnosis have a seizure action plan on file, similar to existing requirements for students with asthma and allergies. The legislation also calls for at least one trained individual in each school to administer epilepsy medications and rescue treatments.
Wyatt pointed out that Michigan currently lags behind more than half of the states in the U.S., with over 25 states having already enacted similar laws. He urged lawmakers to take action, stating, \"It is long past the time for Michigan students with epilepsy to be formally protected while in school.\" The bill represents a significant step toward ensuring the safety and well-being of students affected by epilepsy, a condition that affects over 110,000 individuals in Michigan alone.