The Committee on Business and Economic Development held a public hearing on December 18, 2024, focusing on the Living Donor Protection Amendment Act of 2024. The bill aims to protect living organ donors from discrimination by insurance companies, ensuring they can access life, disability, and long-term care insurance without penalties.

Several speakers, including kidney donors and advocates, shared personal stories highlighting the urgent need for this legislation. One resident, who donated a kidney in May 2023, emphasized the life-saving impact of living organ donation and the barriers that discourage potential donors. They noted that while living donors typically face no health risks, many report losing insurance coverage or facing increased premiums due to their donation status. This discrimination not only affects donors but also contributes to the ongoing shortage of available organs, with over 90,000 Americans currently waiting for kidney transplants.

Another speaker, Karen Alagno, recounted her experience as a living donor for her son, who received a kidney transplant during the COVID-19 pandemic. She expressed frustration over the insurance challenges faced by donors, stating that such discrimination could deter others from donating. Alagno highlighted that many individuals in need of transplants are not in a position to donate themselves, underscoring the importance of encouraging more living donations.

John R. Brandon Baton, a two-time kidney transplant recipient, also supported the bill, pointing out that living donations are not only beneficial for patients but also cost-effective for healthcare systems. He noted that successful transplants can reduce long-term healthcare costs associated with dialysis, which is significantly more expensive.

The committee members acknowledged the importance of the testimonies and the need for the legislation, which has already been adopted in 35 other states. They expressed a commitment to reintroducing the bill in the next council period to ensure that living organ donors in the District of Columbia receive the protections they deserve.

The hearing highlighted the critical role of living organ donors in addressing the kidney transplant crisis and the need for legislative measures to support and encourage this altruistic act.