Kentucky bill proposes perinatal palliative care for families facing fetal anomalies

The House Standing Committee on Health Services convened on February 27, 2025, to discuss House Bill 414, also known as the "Love Them Both" initiative. This legislation aims to enhance support for women and families facing challenging pregnancies, particularly those with fatal fetal anomalies.

Adia Wushner, the executive director of Kentucky Right to Life and a registered nurse, emphasized the importance of perinatal palliative care during her presentation. She described this care as a multidisciplinary approach that not only addresses the needs of the expectant mother but also considers the unborn child and the family. Wushner compared it to hospice care, highlighting the emotional, spiritual, and financial support it provides to families during difficult times.

The committee heard that the legislation seeks to ensure that healthcare providers, including birthing centers and obstetricians, refer patients to appropriate palliative care programs when complications arise. Wushner noted that many families currently lack access to comprehensive support services, which can include genetic testing and bereavement care. She shared a survey indicating that a significant number of families who participated in such programs found them beneficial, particularly in navigating grief and loss.

Representative Camille raised questions about the availability of perinatal diagnostic centers in Kentucky, inquiring about their capacity to diagnose fatal fetal anomalies. Wushner responded that while several hospitals offer these services, not all provide the full spectrum of palliative care, which can leave families unaware of their options.

The discussion underscored the need for improved communication and referral processes within the healthcare system to ensure that all women facing difficult pregnancies receive the necessary support. The committee's deliberations highlighted the emotional weight of the topic, with members acknowledging the personal nature of the experiences involved.

As the meeting concluded, the committee expressed appreciation for the insights shared and the importance of considering this legislation to better support families during challenging times. Further discussions and potential actions regarding House Bill 414 are anticipated in future sessions.