Lexington declares May 2025 Ehlers Danlos and hypermobility spectrum disorder awareness month

During the City of Lexington's regular council meeting on April 28, 2025, a significant proclamation was made to recognize May 2025 as Ehlers Danlos Syndromes and Hypermobility Spectrum Disorders Awareness Month. This initiative aims to raise awareness about these often misunderstood and underdiagnosed conditions that affect the body's connective tissues.

Councilman Burke presented the proclamation, highlighting that Ehlers Danlos Syndrome (EDS) affects more than 1 in 5,000 individuals across all demographics. The condition can lead to various complications, including joint instability, chronic pain, and a higher risk of injury. Hypermobility Spectrum Disorder (HSD) was also discussed, emphasizing the challenges faced by those who experience joint hypermobility without the defining features of EDS.

The proclamation underscored the importance of early and accurate diagnosis, which can significantly improve the quality of life for those affected. It also acknowledged the role of support networks in connecting individuals with EDS and HSD, as well as educating healthcare providers and the public about these conditions.

Mayor Jason Hayes, who shared his personal experiences with chronic health issues, expressed the need for increased research and awareness. He noted that recent cuts to research funding could hinder progress in understanding and treating EDS and related disorders. The mayor's remarks resonated with many in attendance, emphasizing the importance of community support and advocacy for those living with these conditions.

In addition to the proclamation, the council discussed various community initiatives aimed at improving public health and safety, though the focus on EDS and HSD stood out as a poignant reminder of the ongoing challenges faced by individuals with chronic health conditions. The council's commitment to raising awareness reflects a broader goal of fostering a more inclusive and informed community.