Louisiana committee debates genetic data privacy amid 23andMe bankruptcy concerns

The House Appropriations Committee of the Louisiana Legislature convened on May 6, 2025, to discuss a proposed bill concerning data privacy and the use of genetic information. The meeting highlighted significant concerns regarding the implications of the bill for medical facilities and the potential financial burden it could impose.

A key point of discussion centered around the bankruptcy of 23andMe, a genetic testing company, which raised questions about the safety and privacy of genetic data. Representatives expressed concerns that the bill, while aimed at protecting citizens' genetic information, may not adequately address existing vulnerabilities, particularly in light of recent events involving 23andMe.

Representative Jordan emphasized the need for consistency in the legislative process, urging committee members to ensure that bills are thoroughly vetted and amended in committee before reaching the floor. He pointed out that the current bill does not specifically address the issues raised by the bankruptcy of 23andMe, suggesting that it may not effectively safeguard citizens' data.

The discussion also touched on the financial implications for medical facilities. Representatives raised concerns that the bill could require hospitals to replace existing equipment and software that may be sourced from countries deemed as foreign adversaries, including China. This could lead to significant costs for rural hospitals that have already invested heavily in their current technology.

The committee acknowledged the complexity of the bill and the need for clarity in its language. Several members expressed their support for the intent of the legislation but indicated that they could not support it in its current form due to ambiguities that could lead to unintended consequences.

As the meeting concluded, it was decided to defer further discussion on the bill until amendments could be made to address the concerns raised. The committee plans to reconvene to ensure that the legislation is refined and clear before it is presented for a vote on the floor.