Tristan Thomas advocates for insurance coverage of medical devices at health committee

In a poignant moment during the recent House Committee on Behavioral Health and Health Care meeting, Tristan Thomas shared his personal journey with cerebral palsy, shedding light on the challenges faced by individuals with disabilities in accessing necessary medical equipment. As he spoke, the room was filled with a palpable sense of empathy and understanding, highlighting the intersection of health care and personal experience.

Thomas, who has lived with cerebral palsy since birth, described how his condition affects his mobility and coordination. In his early twenties, he faced additional hurdles when stress fractures in both feet led to surgeries that complicated his recovery. The pain from these injuries forced him to withdraw from activities he loved, including a summer internship, leaving him feeling isolated and questioning his ability to participate in life fully.

However, a turning point came when he discovered a dynamic knee ankle foot orthosis (KAFO), a device that promised relief and a chance to regain his active lifestyle. His excitement quickly turned to frustration when he learned that his insurance would not cover the cost of this essential equipment. In a testament to his resilience, Thomas launched a GoFundMe campaign that successfully raised thousands of dollars, allowing him to obtain the KAFO and continue his journey toward a fulfilling career and community service.

Yet, Thomas's story is not just one of personal triumph; it underscores a broader issue within the health care system. He emphasized that individuals should not have to rely on charity to access medically necessary equipment. "This is what we pay our health insurance companies for," he stated, advocating for systemic changes to ensure equitable access to health care for all.

As the meeting progressed, Thomas's testimony resonated with committee members, prompting discussions about the need for reforms in health insurance coverage for assistive devices. His experience serves as a powerful reminder of the ongoing challenges faced by many in the disability community and the urgent need for policy changes that prioritize access to essential health care resources.

In a world where health care should empower rather than hinder, Thomas's call to action is clear: everyone deserves the right to live fully and without barriers. His journey not only inspires hope but also ignites a conversation about the future of health care accessibility in Oregon and beyond.