Senator Taylor advocates for SB 185 to compensate parents as caregivers in Nevada

A pivotal discussion unfolded during the Senate Committee on Finance meeting on May 16, 2025, as lawmakers deliberated on Senate Bill 185, aimed at allowing family members to be reimbursed as caregivers for their disabled children. The bill, championed by Senator Angela Taylor, seeks to address the financial burdens faced by families who often sacrifice employment to provide necessary care.

Anne Jensen, agency manager at Nevada Medicaid, clarified that the fiscal note associated with the bill had been adjusted to reflect the original eligibility and service limitations. This adjustment brought the estimated cost down to approximately $1.3 million, aligning it more closely with initial projections. Jensen emphasized the importance of ensuring that family caregivers meet the same qualifications as outside caregivers, a change that inadvertently expanded eligibility.

Support for the bill was overwhelming, with numerous testimonies from parents and advocates highlighting the dire need for financial assistance. Catherine Nielsen, executive director of the Nevada Governor's Council on Developmental Disabilities, noted the frequent inquiries from parents seeking ways to stay home and care for their children amid a shortage of community providers. Caleb DeKay from Special Olympics Nevada echoed this sentiment, stating that the bill would remove unnecessary barriers and support families.

Personal stories from caregivers underscored the emotional and financial toll of caring for children with disabilities. One mother shared her struggles with the high costs of therapy and the inability to work due to her child's needs, while another highlighted the stress and emotional burden placed on families who often find themselves living paycheck to paycheck.

The committee also heard concerns about proposed changes requiring requalification every six months, which many argued would add unnecessary stress and bureaucracy for families already facing significant challenges.

As the meeting concluded, the committee members were urged to consider the profound impact of SB 185 on families across Nevada. The bill represents not just a financial lifeline but a recognition of the invaluable role that family caregivers play in the lives of their children with disabilities. The anticipated next steps include further discussions and potential amendments as the bill moves forward in the legislative process.