Socorro City Council proclaims June 23 2025 as Dravet Syndrome Awareness Day

During the City Council meeting held on June 5, 2025, in Socorro, Texas, a significant proclamation was made to recognize June 23, 2025, as Dravet Syndrome Awareness Day. This initiative, brought forth by Council Representative Cordero, aims to promote awareness of Dravet syndrome, a rare and severe form of epilepsy that begins in infancy and is characterized by frequent seizures and developmental challenges.

Dravet syndrome affects approximately 1 in every 15,700 individuals, often leading to misdiagnosis and delays in treatment due to its rarity. The proclamation emphasizes the importance of increasing public knowledge and understanding of the condition to improve early diagnosis and support for affected families. It also highlights the ongoing efforts of organizations like the Dravet Syndrome Foundation, which advocate for research and better care for those impacted by this disorder.

Cassandra Durham, a parent of a child diagnosed with Dravet syndrome, shared her personal story during the meeting. She described the daily challenges her son, Xander, faces, including the risk of seizures triggered by common activities. Durham's heartfelt appeal underscored the need for greater awareness and support, stating that "awareness saves lives" and calling for educational efforts to help families like hers.

The council's proclamation encourages residents to learn more about Dravet syndrome and support those affected, marking a crucial step in fostering community awareness and compassion for individuals living with this challenging condition. The meeting concluded with a commitment to utilize social media to further spread awareness and support for Dravet syndrome.