This article was created by AI using a video recording of the meeting. It summarizes the key points discussed, but for full details and context, please refer to the video of the full meeting.
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The recent meeting of the Rare Disease Advisory Council highlighted a significant development in genetic counseling education in Connecticut. The University of Connecticut (UConn) has launched a new master's program in genetic counseling, marking a pivotal step in addressing the growing need for genetic professionals in the state.
Leslie Geyer, the program director, shared that UConn's program is the only one of its kind in Connecticut and took over a decade to establish. The first cohort of graduates completed their studies this past May, and Geyer expressed pride in their accomplishments. The program aims to create a pipeline of skilled genetic counselors who can better serve families navigating rare diseases, a critical need in the community.
One of the program's unique features is its accessibility. As a state institution, UConn offers in-state tuition rates, making it more affordable for students from Connecticut and neighboring New England states. Additionally, the program utilizes an innovative online learning model, allowing students to complete coursework asynchronously. This flexibility is designed to accommodate individuals with full-time jobs or family responsibilities, thus broadening access to higher education in genetic counseling.
Geyer emphasized that UConn's program not only focuses on scientific knowledge but also on professional development. Students receive training in networking, career development, and practical skills essential for success in various sectors, including clinical practice, research, and advocacy. This comprehensive approach is particularly important as the job market for genetic counselors has become more competitive.
The meeting also underscored the importance of advocacy for creating more positions for genetic counselors within Connecticut. Geyer noted that genetic counselors can contribute significantly across multiple sectors, and raising awareness about their diverse skill sets is crucial for expanding job opportunities.
In conclusion, UConn's new genetic counseling program represents a vital resource for Connecticut, aiming to meet the community's needs while fostering the next generation of genetic professionals. As the program continues to grow, it holds the potential to enhance the support available for families affected by rare diseases and to strengthen the overall healthcare landscape in the state.
Converted from Rare Disease Advisory Council, June 24, 2025 meeting on June 30, 2025
Link to Full Meeting