In a recent Michigan Legislature meeting, advocates for children suffering from PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections) urged lawmakers to mandate insurance coverage for critical treatments, particularly intravenous immunoglobulin (IVIG). The discussions highlighted a troubling trend where insurance companies frequently deny necessary treatments, leading to severe consequences for affected children and their families.

Testimonies from parents and medical professionals revealed that many children are denied access to IVIG treatment, which is often deemed medically necessary by their doctors. These denials can result in prolonged suffering and long-term cognitive and emotional harm. One parent shared a personal story about her son, who experienced a dramatic change in behavior due to PANS. After receiving timely IVIG treatment, he was able to recover and thrive academically. However, she noted that many families face obstacles in securing similar care due to insurance company policies.

The meeting underscored that Michigan lags behind other states, with 15 states having already passed bipartisan legislation to ensure coverage for PANS and PANDAS treatments. Advocates pointed out that the cost of implementing such a mandate in Michigan would be minimal, with estimates suggesting an increase of only a few cents in insurance premiums. They argued that the cost of inaction—lost childhoods, increased educational needs, and mental health challenges—far outweighs the financial implications of providing necessary medical care.

The absence of representatives from major insurance companies at the meeting was noted, raising concerns about their accountability and willingness to address the issues at hand. Advocates called for immediate legislative action to protect vulnerable children and ensure they receive the treatments they need without unnecessary delays or denials.

As the meeting concluded, the urgency for legislative change was clear. Advocates emphasized that timely access to treatment is not just a medical issue but a matter of child welfare, urging lawmakers to prioritize the health and futures of Michigan's children.