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Red Hill health registry launches outreach, reports modest early enrollment
Summary
The Red Hill health registry has launched a public resource directory, educational materials and a pre‑enrollment questionnaire; organizers say outreach and referral tools are live but enrollment remains well under targets.
Tara Sutton, director of community engagement for the Red Hill Registry, told the Fuel Tank Advisory Committee on Oct. 1 that the registry has launched public resources and early enrollment tools and is connecting registry participants to services.
Sutton said the project — funded through a five‑year cooperative agreement administered by the Uniformed Services University of the Health Sciences — has established a public resource directory using the Unite Us platform, launched educational fact sheets and delivered community presentations. "We thought creatively and worked with the community to come up with a way to capture information from people who may have been exposed before, during, and after the November 20, 2021, fuel release," Sutton said.
Registry organizers say the resource directory is publicly accessible at redhillregistry.org and that the registry accepts three tiers of enrollment: a short pre‑enrollment questionnaire, a baseline questionnaire for people who used the Navy waterline during the November 2021 exposure window, and an expanded enrollment that includes anyone who used the Navy waterline at any time as well as household members. The expanded enrollment is intended to create cohorts for comparison of exposed and unexposed individuals.
Why it matters: The registry is designed to both connect people to services and to create a longitudinal dataset that researchers may use (with protections) to study possible health effects of Red Hill‑related exposures. Registry organizers said both objectives are critical to local health follow‑up and future research.
Sutton said the registry has produced two fact sheets, is planning webinars and medical education for clinicians, and will offer personalized help with service referrals through Unite Us to people who complete the baseline or expanded questionnaires. She said the registry has a staffed call center at (808) 427‑8260, Monday–Friday, 8 a.m.–4 p.m. Hawaii time.
Enrollment, outreach and next steps: Since formal launch activity in August, Sutton said about 131–135 people have pre‑enrolled. The early cohort is predominantly female; about 41% of pre‑enrollees reported a military service connection, while about 47% declined to provide that information. Sutton described social media as the largest driver of traffic to the registry and asked meeting participants and community groups to share the registry's contact and social handles (RedHillRegistry on Instagram, Facebook, X, BlueSky, Reddit and YouTube). She said the registry hopes to expand continued medical education, webinars and educational materials and to make data (de‑identified) available to researchers who submit proposals.
Sutton said the registry team is also preparing for outreach to schools and youth groups and reported that doctors from the registry team will deliver the registry’s first CME session this month.
Ending: Registry staff said they will continue recruitment and outreach and return to FTAC with further updates. "We thought creatively and worked with the community," Sutton said, thanking the Red Hill community for its involvement. Organizers encouraged people with questions or who want help enrolling to use the registry website or call the registry phone line.
