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Lawmakers hear bill to expand home‑care access for people with ALS and bar quality‑adjusted life‑year metrics
Summary
Senator deDomenico and the ALS Association backed S4465 to allow people with ALS to access certain home‑care services regardless of age and to prohibit use of QALY (quality‑adjusted life‑year) metrics in state assessments; advocates said QALYs can devalue life for people with fatal or disabling conditions and urged prompt action.
Family members, clinicians and the ALS Association urged the Joint Committee on Elder Affairs to support Senate Bill 4465, which would (1) extend eligibility in certain Medicaid‑funded home care programs to people living with amyotrophic lateral sclerosis (ALS) regardless of age when otherwise eligible, and (2) prohibit the use of quality‑adjusted life‑year (QALY) measures in state cost‑effectiveness assessments.
Senator deDomenico introduced the bill and delivered personal testimony: he described his mother’s ALS diagnosis and urged expedited action because ALS…
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