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Committee lays over bill to make rare disease council budget permanent

5128531 · March 5, 2025
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

The Minnesota House Health Finance and Policy Committee heard testimony supporting House File 1501, which would set the Minnesota Rare Disease Advisory Council's current fiscal budget as an ongoing base; the committee laid the bill over for possible inclusion in the omnibus bill.

The Health Finance and Policy Committee on March 10 laid over House File 1501 for possible inclusion in the omnibus bill after testimony about making the Minnesota Rare Disease Advisory Council's current fiscal-year budget the council's permanent base.

Representative Murphy introduced the bill, saying, “15‑01 appropriates money to the general fund for the rare disease council … in the area of $342,000 to run the Minnesota rare disease council.” Erica Barnes, executive director of the Minnesota Rare Disease Advisory Council, testified in support: “The Minnesota Rare Disease Advisory Council is a state agency established in 2022 whose mission is to improve care…

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