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Advocates Urge Senate Health Committee to Keep $1M-a-Year ALS Line in HB96
Summary
Representatives of ALS nonprofits and people with ALS told the Senate Health Committee that the executive and House budgets include $1,000,000 per year for ALS care services and urged the Senate to maintain that funding in House Bill 96.
Marlene Seymour, representing ALS United Ohio, told the Senate Health Committee she was asking lawmakers “to support continuing $1,000,000 per year” for ALS care services that are already in the executive and House budgets.
“ALS is a progressive terminal neurodegenerative disease that destroys the connections between the brain and the muscles,” Seymour said, describing how the condition “gradually robs people of the ability to speak, eat, walk and eventually to breathe.” She asked the committee to preserve the allocation in House Bill 96 and pointed senators to the line-item language and a nonprofit report documenting how the prior appropriation was spent.
The ALS Association and families…
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