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Advocates urge Ohio Senate to keep $1 million-per-year ALS funding in HB 96
Summary
Patients, caregivers and ALS nonprofits told the Senate Health Committee that $1 million per year in the state operating budget is critical for equipment, case management and home supports; witnesses described gaps when insurers denied standard-of-care equipment.
Marlene Seymour, a representative of ALS United Ohio, and witnesses from the national ALS Association and families urged the Ohio Senate Health Committee to keep a $1,000,000-per-year line item for amyotrophic lateral sclerosis (ALS) care in the biennial budget.
The request is already included in the executive budget and the House version of House Bill 96; speakers said the state allocation helps nonprofits provide case management, equipment loans and emergency grants to people living with ALS. "This additional funding from the state will continue to assist in meeting the needs of increasing…
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