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ALS groups urge Senate to keep $1 million-a-year line in HB 96 for patient services

3310886 · May 7, 2025
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

Advocates from ALS United Ohio and the ALS Association told the Senate Health Committee the House and executive budgets already include $1,000,000 per year for ALS services and asked the Senate to retain that funding to help rising case loads and cover equipment, case management and caregiver supports.

Marlene Seymour, speaking for ALS United Ohio, told the Senate Health Committee she was asking lawmakers to “support continuing $1,000,000 per year” in the biennial budget for services to people with amyotrophic lateral sclerosis (ALS). She said the amount is already included in the executive budget and the House version of House Bill 96 and pointed committee members to the program line item and an attached state funding outcomes report.

The request centered on a recurring appropriation that Seymour identified as line item 440,485 in House Bill 96. Seymour described ALS as a progressive,…

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