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ALS advocates urge Senate to keep $1 million-a-year appropriation in HB 96
Summary
Multiple ALS organizations and people living with ALS told the Senate Health Committee the governor's and House budgets include $1,000,000 per year for ALS care services (line item 440,485 in HB 96) and asked senators to maintain that funding to continue case management, equipment loans and other supports for Ohioans with ALS.
Marlene Seymour, speaking for ALS United Ohio, told the Ohio Senate Health Committee she was asking lawmakers to “support continuing $1,000,000 per year” in the biennial budget to fund services for people with amyotrophic lateral sclerosis (ALS).
"I'm testifying today representing people with ALS in Ohio," Seymour said, and she referenced a state funding outcomes report attached to her testimony showing what the groups invested after the last appropriation.
The request is for a line item already included in the executive budget and the House budget; Seymour cited House Bill 96, line item 440,485. She described ALS as “a…
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