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Students, clinicians and Tourette Association urge state designation of June 7 as Tourette Syndrome Awareness Day
Summary
Youth ambassadors, clinicians from Mass General and the Tourette Association of America asked the Joint Committee on State Administration and Regulatory Oversight to designate June 7 as Tourette Syndrome Awareness Day to reduce stigma, improve diagnosis and speed access to treatments and school supports.
Parents, clinicians and youth ambassadors for the Tourette Association of America told the Joint Committee on State Administration and Regulatory Oversight on May 12 that designating June 7 as Tourette Syndrome Awareness Day would increase diagnosis, reduce stigma and help children get school supports sooner.
The committee heard three panels: an overview panel with family members and youth ambassadors; a medical panel that included a developmental pediatrician and clinical research staff from Massachusetts General Hospital; and a youth panel of young people diagnosed with Tourette Syndrome.
“My tics became intrusive and started to interfere with my daily life,” Owen Rosenthal, a Lexington High School junior and a youth ambassador…
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