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Mother’s testimony and experts tell senators pediatric clinical trials and cancer research need protection
Summary
At the Appropriations hearing, Emily Stinson and multiple scientific witnesses described how federal research funding and clinical trials saved her daughter’s life and said freezes or cancellations of grants and trials would be devastating to children and families.
Emily Stinson, a patient advocate and co‑founder of the Stinson Foundation, testified before the Senate Appropriations Committee that her daughter Charlie’s access to clinical trials at Seattle Children’s Hospital produced a lifesaving outcome.
“Charlie was diagnosed with stage 4 germ cell cancer in November of 2022 when she was just 3 years old,” Stinson told the committee. She described a 5‑inch tumor that had spread to Charlie’s liver, subsequent high‑dose chemotherapy and stem cell transplants, a relapse and a second course of treatment. Stinson said Charlie is again cancer free and “started preschool in February and is back to the joyful chaos of 5‑year‑old life.” She attributed access to…
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