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Committee adopts written-assurance requirement and approves H.293 on health-equity data sharing
Summary
The committee approved H.293, an act relating to health equity data reporting and registry disclosure requirements, after adopting an amendment that requires written agreements and institutional-review-board or privacy-board approvals before releasing confidential registry data to researchers.
A legislative committee voted to approve H.293, an act relating to health equity data reporting and registry disclosure requirements, after adopting an amendment that requires written assurances and institutional review board or privacy board approval before confidential registry data are released to researchers.
Katie MacDonough, Office of Legislative Council, told the committee that the draft (version 1.2) is on the committee website and that the change staff drafted was limited and technical. "They are highlighted in yellow," MacDonough said, and described language added to require written assurances and, in the case of researchers, "written evidence of approval of an institutional review board or…
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