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Global Down Syndrome Foundation urges continued NIH support for INCLUDE research network

2928659 · April 9, 2025
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Summary

The Global Down Syndrome Foundation told the House appropriations subcommittee that the NIH's INCLUDE initiative has expanded research across institutes and produced clinical trials and datasets, and asked Congress to sustain NIH funding amid organizational changes at HHS.

Michelle C. Whitton, cofounder and chief executive of the Global Down Syndrome Foundation, told the House Appropriations Subcommittee that NIH's INCLUDE initiative has catalyzed Down syndrome research across multiple institutes and produced new clinical cohorts, whole‑genome datasets and clinical trials.

Whitton said that before INCLUDE, Down syndrome research was concentrated at…

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