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Rare Disease Advisory Council organizes awareness projects, Denise DiCenzo Foundation walk and family picnic
Summary
The council’s awareness committee outlined outreach projects, including a mapping project, the Denise DiCenzo Foundation walk in April and a family picnic hosted by Connecticut Rare Action Network on May 10 at Winding Trails.
The Rare Disease Advisory Council’s awareness committee told members it will begin organizing outreach projects and public events if funding authority is secured. Committee members described plans for a rare‑disease mapping project for Connecticut, expanded web and social‑media presence and a schedule of spring events.
Helene, leading the awareness committee update, said she will gather volunteer contact information and…
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