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Yale site of NIH Undiagnosed Diseases Network begins accepting applications, staff warn of possible funding shortfall

2867176 · March 25, 2025
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

Council members heard that the Undiagnosed Diseases Network (UDN) site at Yale is now accepting patient applications but that NIH funding uncertainty may limit services later this year.

Michelle Spencer Manzan, co‑chair and physician representative of the Rare Disease Advisory Council, reported that Yale recently became a site for the Undiagnosed Diseases Network (UDN), a National Institutes of Health program that evaluates patients with undiagnosed conditions most likely to have a genetic cause.

"We actually went live,…

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