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Committee hears bill to establish Amyloidosis Awareness Day; sponsor cites racial genetic risk and limited local treatment access
Summary
A sponsor presented HB 103 to establish May 8 as Amyloidosis Awareness Day in Missouri. The sponsor and committee discussed the disease's underdiagnosis, its higher hereditary risk in some Black Americans, and limited specialized treatment centers in Kansas City and St. Louis; the committee recorded no opposition and no vote at the hearing.
A bill to establish May 8 as Amyloidosis Awareness Day in Missouri was presented to the Special Committee on Tourism during a public hearing.
The sponsor (identified in the hearing only as the bill’s representative) described amyloidosis as a rare and frequently underdiagnosed condition caused by buildup of misfolded proteins that can lead to organ damage and death. The sponsor said the disease…
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