Get Full Government Meeting Transcripts, Videos, & Alerts Forever!
Panel hears H46 to create Vermont rare-disease advisory council
Summary
Lawmakers heard H46, a full bill to establish a rare-disease advisory council to advise the Department of Health, gather public input and publish resources; committee members generally supported taking up the legislation for further work.
Committee Chair Sam opened the session by taking a straw poll on which bills the committee would consider; Representative Anne Donahue then introduced H46, a full bill to establish a Vermont Rare Disease Advisory Council.
The bill would create a statewide council (often called an RDAC in other states) to gather public input, consult experts, publish a list of available resources for rare diseases and provide annual reports and testimony on pending legislation affecting Vermont’s rare-disease community. Representative Anne Donahue said many other states have similar councils and that testimony from families and advocates in multiple sessions…
Already have an account? Log in
Subscribe to keep reading
Unlock the rest of this article — and every article on Citizen Portal.
- Unlimited articles
- AI-powered breakdowns of topics, speakers, decisions, and budgets
- Instant alerts when your location has a new meeting
- Follow topics and more locations
- 1,000 AI Insights / month, plus AI Chat
