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Yale UDN site accepting referrals; federal grant guidance limits some planned outreach
2784602 · January 28, 2025
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Summary
The Yale Undiagnosed Diseases Network (UDN) site is open and accepting patient referrals, but NIH/UDN funding guidance under review has led the site to pause expansion plans until federal instructions are clarified
The Yale Undiagnosed Diseases Network (UDN) site is accepting referrals from clinicians whose patients remain undiagnosed after exhaustive workups, but program leaders told the Rare Disease Advisory Council that some broader grant‑mandated activities are on hold pending federal guidance.
Why it matters: UDN sites…
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