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Pediatric hospice work group outlines program redesign; proposed state bill would adopt its recommendations
Summary
Work group co-chair Toni Anne said members have identified barriers to pediatric palliative and hospice care and are drafting program levels and funding options; a proposed state bill would adopt the group's recommendations but final language is not yet available.
Toni Anne, co-chair of the pediatric hospice work group, said the panel has finished a wide-ranging review of barriers to pediatric palliative and hospice care in Connecticut and is developing a redesigned program with defined levels of care and funding options.
The group is discussing how to preserve families' existing shift nursing and home-care supports while also offering hospice services, and whether routine levels of hospice care can be provided in hospitals. “Why does it have to be a 6-month criteria? Why did they lose their shift nursing? Why can't we do routine level of care in a hospital?” Toni Anne said. She…
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