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Parents, clinicians urge universal newborn screening, education for congenital CMV
Summary
Multiple families and clinicians told the Joint Committee on Public Health that congenital cytomegalovirus (cCMV) screening and prenatal education should be universal in Massachusetts, citing cases where missed testing prevented timely antiviral treatment during the 21-day window that can preserve hearing and development.
Parents, clinicians and audiologists told the Joint Committee on Public Health that Massachusetts should adopt universal newborn screening and standardized prenatal education for congenital cytomegalovirus (cCMV) to prevent missed treatment opportunities that can cause lifelong hearing and developmental disabilities.
"By the time we learned the truth, it was too late," Danielle LaVaughn told the committee about her son Ryan, who lost hearing before clinicians could treat him. "A window missed not because we weren't paying attention, but because the system…
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