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Parents urge universal newborn screening and prenatal education for congenital CMV after delayed diagnoses

5463340 · July 14, 2025
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

Multiple families and clinicians told the Public Health Committee that universal education about cytomegalovirus (cCMV) in pregnancy and routine newborn testing would prevent missed treatment windows and reduce hearing and developmental loss.

Parents and clinicians urged the Joint Committee on Public Health to require prenatal education about congenital cytomegalovirus (cCMV) and universal newborn screening, saying early detection can allow medical treatment and early interventions that improve language and developmental outcomes. "When Ryan was born, no one mentioned CMV — not during pregnancy, not after delivery, not once across three children," said Danielle LaVaughn, whose son Ryan was born with cCMV and…

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