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Regional ASD surveillance expands; committee reports Driscoll data and outreach to medical community
Summary
The Community for Global Disabilities received an update that the group’s ASD surveillance project has expanded data collection to additional counties and sends data to a CDC analysis center; members also reported outreach to local neurologists and an invitation to present to a neuroPage coalition.
The Community for Global Disabilities heard an update July 16 on a regional autism surveillance project that has expanded its data collection beyond its original site and forwards records to a CDC analysis center in Georgia. Committee staff said they have received data from Driscoll and are adding records from multiple counties as the project grows.
“We did receive data from Driscoll,” a program staff member reported during the meeting, noting that the surveillance area now includes multiple counties. The project lead said some member organizations are on vacation but will forward additional records so the surveillance can continue into the next reporting year.
Why it matters: The surveillance project aims to estimate the prevalence of autism spectrum disorder across a larger South Texas area by combining records from hospitals and school systems. Committee members said expanding the surveillance area would strengthen the project’s competitiveness for future federal funding cycles.
Medical outreach and invitations: Committee members said a nurse practitioner for a local pediatric neurologist contacted the group after a recent community event and invited the committee to present at a regional neuroPage coalition to explain their data and encourage medical partners to share records. Committee members also said they had been working to schedule a speaker from Corpus Christi (a pediatric neurologist) to present remotely; staff said scheduling and institutional approvals were still pending.
Data flow and funding: Staff reported that some analysis is done locally and that the rest is sent to the CDC analysis center in Georgia as part of the federal grant that funds the surveillance work. Committee members discussed the grant cycle and said expanding data collection to additional age groups and counties would improve competitiveness for future funding.
Ending: Staff said they will continue to collect incoming records, coordinate presentations with medical partners and report progress to the committee at a future meeting.
