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Families and clinicians press for study of PANS/PANDAS prevalence in psychiatric and therapeutic school settings
Summary
Dozens of family members, clinicians and young people testified in support of S.1415, which would direct the Department of Mental Health and Department of Education to study how many children in therapeutic day schools and psychiatric hospitals may have PANS/PANDAS and to recommend changes in screening and service coordination.
A large panel of parents, clinicians, educators and young people gave emotional testimony asking the committee to approve S.1415, a resolve directing agencies to study the prevalence of PANS/PANDAS and recommend measures to improve screening and care coordination for children with infection‑triggered neuroimmune psychiatric syndromes.
Speakers described repeated misdiagnosis, long waits for specialist care, high out‑of‑pocket costs and, in some cases, traumatic encounters with…
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