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Texas Senate approves statewide sickle cell disease registry after privacy amendment
Summary
The Texas Senate passed House Bill 107 to create a Department of State Health Services registry for sickle cell disease, adding privacy protections and reporting requirements after floor amendment adoption; final passage was 25–6.
The Texas Senate on a divided vote approved House Bill 107, creating a statewide sickle cell disease registry under the Department of State Health Services to track cases, improve care and support research.
Supporters said the registry will help identify patients and coordinate care where earlier efforts and federal emphasis on treatment have raised opportunities; opponents expressed privacy concerns until a floor amendment strengthened confidentiality and safeguards. Senator Miles, the measure’s floor sponsor, told colleagues the bill “adds stronger privacy protection and patient choice.”
The b…
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