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House Appropriations committee reports bill to create Vermont Rare Disease Advisory Council
Summary
The House Appropriations Committee voted to report H.46 favorably after hearing from Legislative Council and the fiscal office that establishing a Rare Disease Advisory Council in the Department of Health would have minimal fiscal impact.
The House Appropriations Committee on May 8 reported H.46 favorably to create a Rare Disease Advisory Council within the Vermont Department of Health, after members heard bill language from Legislative Council and a fiscal summary from the Legislature's fiscal staff.
Katie McGlynn, Legislative Counsel with the Office of Legislative Council, told the committee the bill "creates a Rare Disease Advisory Council within the Department of Health to provide guidance and recommendations to the public, General Assembly, and other governmental agencies and departments as necessary regarding the needs of individuals living with rare diseases in Vermont." The bill lays out membership categories, duties and meeting requirements, McGlynn said.
The council would include two individuals living with a rare disease (at least one an older Vermonter), a parent or guardian of a person with a rare disease,…
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