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RDAC schedules in‑person meetings for late 2025, discusses member terms and awareness events
Summary
The Rare Disease Advisory Council agreed on a meeting cadence for July–December 2025 (mix of remote and in‑person), reviewed upcoming awareness events, and discussed member-term renewals that require outreach to appointing officials.
The Rare Disease Advisory Council on April 22 agreed informally to a meeting cadence for the July–December 2025 period, discussed outreach and volunteer staffing for awareness events, and reviewed member-term renewal procedures that require letters from CGA appointing authorities.
The council agreed to keep July remote, aim for three in-person meetings in late summer/fall (proposed dates discussed included Aug. 26, Sept. 23 and Oct. 28), and to hold a combined remote meeting for December (proposed Dec. 9). Members asked staff to send availability checks and to confirm in-person rooms and locations.
Why it matters: RDAC members said in-person meetings will help…
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