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Committee advances bill to require insurer coverage for PANS/PANDAS treatment after families testify about high costs
Summary
House Bill 408, sponsored by Representative Dickerson, was reported favorably after emotional testimony from families and clinicians describing pediatric acute-onset neuropsychiatric syndrome (PANS/PANDAS), treatment paths including IVIG, and coverage denials; insurers cautioned about clinical consensus and recommended specialty cohort review.
House Bill 408, carried by Representative K. Dickerson, would require health-insurance coverage for treatment of pediatric acute-onset neuropsychiatric syndrome (PANS/PANDAS) and related conditions. The House Insurance Committee voted to report the bill favorably after extensive testimony from affected families, clinicians and insurers.
Representative K. Dickerson said families’ out-of-pocket costs for therapies and infusions can be substantial and that some states have enacted coverage measures. Parents and children provided detailed testimony. Caitlin Giuffrida described her daughter’s acute…
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