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House advances sickle cell disease registry bill to engrossment after emotional floor debate
Summary
Lawmakers on the Texas House floor voted to pass House Bill 107 to engrossment after members described how a statewide sickle cell registry would improve data, research and care coordination; final passage will require further action.
House Bill 107, which would create a statewide sickle cell disease registry in Texas, was passed to engrossment by the Texas House after a floor exchange in which the bill’s author described the condition’s health impacts and other members asked questions about the bill’s purpose and intended use.
Representative Sydney Simmons, the bill’s author, told the chamber that HB 107 would establish a centralized Texas registry to help researchers, clinicians and lawmakers better understand the prevalence and needs of people living with sickle cell disease. Simmons said the measure is intended to improve access to care, inform research priorities…
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