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UVM Larner dean backs rare-disease council in principle but prefers Department of Health lead
Summary
Dr. Paige, dean of the Larner College of Medicine at UVM, told the House Human Services Committee she supports a rare-disease advisory council in Vermont but said the Department of Health is the most natural host; she offered UVM as an enthusiastic partner and said the college could accept a statutory designation if lawmakers requested it.
The House Human Services Committee took testimony on H.46, a bill to establish a Rare Disease Advisory Council, and heard from Dr. Paige, dean of the Larner College of Medicine at the University of Vermont.
Dr. Paige said she supports the concept and applauded efforts to create a council that could coordinate services, research and advocacy for people with rare diseases. She told the committee she is not a rare-disease specialist but that "we have experts in many of the…
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