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Committee backs resolution designating May as Ehlers-Danlos syndrome awareness month
Summary
House Concurrent Resolution 4, to designate May 2025 as Ehlers-Danlos Syndrome and hypermobility spectrum disorders awareness month, advanced from committee after testimony from patients, advocates and clinicians describing diagnostic challenges and care needs.
On March 5, 2025, the House Committee on Rules advanced House Concurrent Resolution 4 to designate May 2025 as Ehlers-Danlos Syndrome (EDS) and hypermobility spectrum disorders awareness month following public testimony from patients and advocates.
Representative Emily McIntyre introduced the resolution and described Ehlers-Danlos syndromes as a group of 13 heritable connective tissue disorders that can cause joint hypermobility, skin hyperextensibility and tissue fragility; she said the…
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