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Lawmakers hear parents and clinicians pressing for expanded newborn CMV screening and broader newborn-screening updates
Summary
The House committee heard testimony for three related measures: HB 2685 to expand congenital CMV education and targeted screening, HB 3192 to add rare genetic conditions like Duchenne to the newborn panel and HB 2741 to codify follow-up and family supports in the newborn blood-spot program.
Lawmakers in the House Behavioral Health and Health Care Committee heard extended testimony Feb. 20, 2025, on a cluster of bills to expand newborn screening, standardize follow-up and add education about congenital cytomegalovirus (CMV).
Representative Hai Pham and Representative Bobby Levy led testimony in support of HB 2685, which would direct the Oregon Health Authority to establish a standardized, low-cost targeted CMV screening protocol for newborns showing signs within 14 days of birth and to distribute prenatal CMV education to expectant parents and childcare settings. Parents and pediatric clinicians described cases in which diagnosis…
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