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Senate committee hears testimony on bill to allow individualized right-to-try treatments

2314993 · February 14, 2025
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

Proponents told the Senate Committee on Public Health and Welfare that Senate Bill 250 would create a physician-directed pathway for personalized, DNA-based investigational treatments for patients with ultra-rare, life-threatening diseases. Committee closed the hearing and scheduled final action for Monday.

At a hearing of the Senate Committee on Public Health and Welfare, proponents testified in favor of Senate Bill 250, the "Right to Try for Individualized Treatments Act," which would let certain manufacturers and eligible facilities make individualized investigational drugs, biologics or devices available to patients when recommended by a physician.

The bill, summarized by committee staff member Jenna, would allow a manufacturer operating within an eligible facility that holds a Federal Wide Assurance (FWA) to provide an ‘‘individualized investigational treatment’’ — treatments created uniquely for a single patient based on that patient’s genetic profile — and to require the patient to pay associated costs. Jenna told the committee the bill would not expand what insurers must cover and that a governmental agency may choose to pay…

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