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Senate committee hears bill to create Kentucky Parkinson’s disease registry; takes no vote
Summary
Senate Bill 27, presented by Sen. Brandon Storm, would create a Parkinson’s disease research registry overseen by the Cabinet for Health and Family Services. Lawmakers discussed scope, privacy protections and fiscal needs; the committee did not vote and asked for a fiscal estimate and follow-up.
Sen. Brandon Storm (21st District) introduced Senate Bill 27, a proposal to create a Kentucky Parkinson’s disease research registry to be overseen by the Cabinet for Health and Family Services. Storm said the registry would study incidence and prevalence, create an advisory committee of clinical and public-health experts, and require data collection and reporting beginning in 2026.
Storm noted the effort was supported by national partners and referenced a letter from the Michael J. Fox Foundation included in the committee packet. The letter’s figures were recited to the committee: about 1,000,000 Americans live with Parkinson’s disease, roughly 90,000 are diagnosed each year…
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