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Parents of medically complex minors seek right to be paid caregivers under proposed waiver change
Summary
House Bill 1200 would require DDA to seek a Medicaid waiver amendment allowing parents to be paid for extraordinary care of minor children; parents, nurses and providers testified about caregiver shortages and financial strain, and supporters said the change could keep children at home and reduce high institutional costs.
Representative Jamila Taylor introduced House Bill 1200, which would direct the Developmental Disabilities Administration to seek federal Medicaid approval to allow parents of minors with extraordinary, assessed care needs to be paid as caregivers under waiver rules.
"This is not the typical, just feed and clothe your children," Representative Jamila Taylor said, urging the committee to recognize that some parents provide extraordinary personal care that exceeds ordinary parenting duties and that the workforce shortage has left families without alternatives.
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