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Bill would create Washington rare‑disease advisory council housed at UW School of Medicine
Summary
House Bill 1238 would establish a Rare Disease Advisory Council at the University of Washington School of Medicine to advise the Secretary of Health on diagnosis, research, treatment and education for rare diseases.
House Bill 1238 would create a Rare Disease Advisory Council (RDAC) based at the University of Washington School of Medicine to advise the secretary of health on matters related to rare diseases, committee staff and witnesses said at a Jan. 22, 2025 hearing.
Committee staff summarized federal guidance that a rare disease is one that affects fewer than 200,000 people in the United States and said the bill tasks the RDAC with advising on research, diagnosis, treatment, education and public information. Under the proposal the secretary of health would appoint 12 voting members representing…
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