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Committee votes unanimously to refer newborn screening bill to appropriations after advocates highlight rare-disease cases

2124128 · January 16, 2025
AI-Generated Content: All content on this page was generated by AI to highlight key points from the meeting. For complete details and context, we recommend watching the full video. so we can fix them.

Summary

A House committee voted 22-0 to refer HB 1782 to appropriations. The bill would require Virginia to automatically consider disorders listed on the federal Recommended Uniform Screening Panel (RUSP) for inclusion in the Commonwealth newborn screening program and set timelines for evaluation and implementation.

A House committee voted unanimously, 22-0, to report HB 1782 to the Appropriations Committee after testimony from rare-disease advocates, hospitals and parents. The bill would require the Virginia Department of Health to automatically consider disorders placed on the federal Recommended Uniform Screening Panel (RUSP) for the Commonwealth newborn screening program and set deadlines for evaluation and implementation.

Delegate Sullivan, the bill patron, told the committee Virginia performs more than 4 million newborn screening tests yearly through the Division of Consolidated…

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