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Working group advances ‘Champion Care’ model to expand pediatric palliative and hospice services in Connecticut
Summary
A statewide working group discussed a proposed integrated model—branded in-session as “Champion Care”—to expand pediatric palliative and hospice services, and agreed to next steps including a DPH-led survey, a provider mapping exercise and a follow-up meeting to refine recommendations.
Members of the Pediatric Palliative and Hospice Working Group met virtually to discuss barriers and design elements for an integrated pediatric palliative-plus-hospice model for Connecticut, a concept participants called “Champion Care” or “CHAMPS.” The group agreed to concrete next steps: the Department of Public Health (DPH) will draft and circulate a survey of licensed home‑care and hospice agencies, DPH staff offered to map provider capacity across the state, and the group scheduled a follow‑up meeting for Jan. 29 to review data and a draft report.
The proposal matters because panelists described a small statewide workforce and multiple practical barriers that keep medically complex children in hospitals or on waiting lists instead of receiving coordinated in‑home care. “That seems to be the major barrier that we're seeing,” said Jasmine (workgroup member), summarizing repeated comments that finding an agency willing and able to provide pediatric care at home is often the limiting step.
Participants outlined three broad priorities for the report: create a…
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