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Families praise HSCSN as lifeline for children with complex needs; program faces home‑health access bottlenecks
Summary
Parents told the Committee on Health that Health Services for Children with Special Needs (HSCSN) enabled children with complex conditions to go home and receive ongoing care, but HSCSN and legal advocates warned of lengthy delays for pediatric home health and shortages of personal care aides.
Several parents testified at the Sept. 30 roundtable about the role of Health Services for Children with Special Needs (HSCSN) in enabling complex pediatric care at home.
“My name is Erin Sabonsky. I am here to express my gratitude for my son Anthony’s health care coverage through Health Services for Children with Special Needs,” said a parent who described HSCSN as essential after her son’s brain injury required ventilator and 24‑hour skilled nursing supports. She credited HSCSN case managers with coordinating home nursing and growth‑hormone therapy that allowed the family to leave long‑term inpatient care and return home in 2012. “We do not have the financial resources or very much extra time to take legal actions…
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