Get Full Government Meeting Transcripts, Videos, & Alerts Forever!
RDAC awareness project advances; members briefed on website funding and state contracting via Department of Public Health
Summary
The RDAC's awareness committee is compiling a statewide contact list of patient groups, nonprofits, researchers and industry; members were asked to volunteer for data collection. Department of Public Health staff warned that state contracting for any future website or grants will be complex and potentially slow.
The RDAC's awareness committee reported progress compiling a statewide list of rare-disease stakeholders and asked members for volunteers to help with data collection and verification. The council also discussed next steps for building an RDAC calendar and pursuing funding to create a public website or centralized events calendar.
Colleen Brunetti, chair of the awareness committee, described the committee's work: volunteers are populating a multipage…
Already have an account? Log in
Subscribe to keep reading
Unlock the rest of this article — and every article on Citizen Portal.
- Unlimited articles
- AI-powered breakdowns of topics, speakers, decisions, and budgets
- Instant alerts when your location has a new meeting
- Follow topics and more locations
- 1,000 AI Insights / month, plus AI Chat
