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RDAC members asked to complete biannual demographic form for Secretary of State; 6 of 13 responses recorded
Summary
The RDAC chair said councils with legislative or gubernatorial appointees must submit biannual demographic reports to the Secretary of State; members were asked to complete a Microsoft Form by mid-September. At the meeting the chair reported six responses from 13 appointed members.
The Rare Disease Advisory Council was asked to submit biannual demographic data to the Connecticut Secretary of State and members were urged to complete a short Microsoft Form before the mid-September deadline.
Michelle Spencer Manzan, RDAC co-chair, summarized guidance she received: councils with legislative or governor appointments must report demographic data to the Secretary of State every two years. She said the form is brief, contains a "prefer not to answer" option for respondents who do not wish to disclose demographics, and asked members to reach 100% response among appointed members.
A staff administrator (who identified themselves as helping to administer the group) explained the administrative workflow: they will drop the Microsoft Form link into the meeting chat, aggregate responses, and follow up after the meeting. At the time of the meeting Spencer Manzan said the council had received six responses of 13 appointed RDAC members.
Council members confirmed the form is quick to complete and encouraged colleagues to respond. The chair said she would follow up by email and share collected results with the council.
Ending: The RDAC chair will collect outstanding forms, aggregate responses and submit the required report to the Secretary of State; members were reminded they may choose "prefer not to answer" if they wish to opt out of disclosing demographic details.
