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Action committee sets timeline and data priorities for statewide pediatric hospice pilot report
Summary
Connecticut's pediatric hospice action committee set a fast timeline to produce a report to the state assembly, identified data gaps and owners for work streams, and discussed RN certification, resource centralization and possible models including Massachusetts.
Melissa, an organizer of the Pediatric Hospice Action Committee, said the group must produce a report to the state assembly that "prove[s] the need for having a program" and include metrics, analysis of existing state programs and pilot cost estimates.
The committee is operating on a compressed schedule: members were asked to assemble material by mid-December for internal synthesis, with a draft report due to the assembly by Thursday, Feb. 6, according to Melissa. The group agreed to reconvene in two weeks and to treat the next session as an action-team meeting to vet models and data needs.
Why it matters: committee members told the meeting that strong, verifiable data and clear staffing and licensure frameworks will be essential to win legislative support and to design any pilot that would deliver pediatric hospice or palliative services in homes and hospitals statewide.
At the meeting, members mapped work streams, named likely activity owners and discussed immediate priorities:…
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