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University of Michigan doctor, family urge action on rare kidney disease at House Health Policy Committee
Summary
A University of Michigan pediatric nephrologist and a mother of a teenager with recurrent FSGS testified to the House Health Policy Committee about the disease’s severity, limits of current treatments and need for earlier diagnosis and research pathways.
The House Health Policy Committee heard testimony from a University of Michigan pediatric nephrologist and a family Thursday about focal segmental glomerulosclerosis, or FSGS, a rare kidney disease that can lead to end-stage kidney failure.
Zubin Modi, a pediatric nephrologist and director of the pediatric nephrology research program at the University of Michigan, told the committee FSGS causes patients to lose protein in the urine and can result in swelling, infection, breathing difficulties and blood clots. "Some people will get better with medications that decrease your immune system, but unfortunately, many patients don't," Modi…
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